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Niemann–Pick disease
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121	Happy Spring from the National Niemann-Pick Disease Foundation! March 2012 NNPDF 20th Annual Family Support and Medical Conference Add to Reading List Source URL: www.nnpdf.org Language: English - Date: 2012-03-28 16:58:24 Neurodegenerative disorders Niemann–Pick disease Niemann-Pick disease type C Lipid storage disorders Rare diseases Health
122	National Niemann-Pick Disease Foundation 401 Madison Avenue, Suite B Post Office Box 49 Fort Atkinson, WI[removed][removed]; Fax[removed]E-mail: [removed] Add to Reading List Source URL: www.nnpdf.org Language: English - Date: 2010-12-16 10:25:03 Niemann–Pick disease Niemann-Pick disease type C Lipid storage disorders Rare diseases Health
123	National Niemann-Pick Disease Foundation, Inc. P.O. Box 49; Fort Atkinson, WI[removed]USA) Tele: [removed]; Fax: [removed]Web Site: www.nnpdf.org Email: [removed] MEMBERSHIP FORM Add to Reading List Source URL: www.nnpdf.org Language: English - Date: 2014-04-14 18:10:54 Health Niemann–Pick disease Email Niemann Fax Internet Technology Lipid storage disorders Rare diseases
124	National Niemann-Pick Disease Foundation, Inc. P.O. Box 49; Fort Atkinson, WI[removed]USA) Tele: [removed]; Fax: [removed]Web Site: _www.nnpdf.org_ Email: [removed]_ Add to Reading List Source URL: www.nnpdf.org Language: English - Date: 2013-11-14 12:40:45 Niemann–Pick disease Email Niemann Lipid storage disorders Rare diseases Health
125	Freya Davison-Hulme 23 January 1998 – 26 February 2005 We lost our beautiful daughter, Freya, suddenly and unexpectedly in her sleep, in February 05. Freya had Niemann Pick Disease Type C. She was totally adored; the Add to Reading List Source URL: www.climb.org.uk Language: English - Date: 2014-03-20 12:23:37 Imp Hulme Chi Chobits Freya
126	Support Accelerated Approval of Drugs for Ultra-Rare Diseases to Benefit Vulnerable Patients, Promote Biotechnology Innovation and Stimulate Job Growth in the United States January 4, 2012 The Honorable Fred Upton, Chair Add to Reading List Source URL: www.curesarcoma.org Language: English - Date: 2012-01-06 16:36:41 Neurodegenerative disorders Drug discovery Epidemiology Orphan drug Orphan Drug Act Niemann–Pick disease Batten disease FDA Fast Track Development Program Medical research Health Rare diseases Lipid storage disorders
127	As of January[removed]Summary of Nominated Conditions to the Recommended Uniform Screening Panel (RUSP) CONDITION Adrenoleukodystrophy (ALD) Add to Reading List Source URL: www.hrsa.gov Language: English - Date: 2014-02-08 05:13:35 Adrenoleukodystrophy Glycogen storage disease type II Niemann–Pick disease Time and date Leukodystrophy Health Rare diseases Medicine
128	Ms. Barbara Vorpahl Chair National Niemann-Pick Disease Foundation P.O. Box[removed]Madison Avenue, Suite B Ft. Atkinson, WI 53538 Add to Reading List Source URL: www.hrsa.gov Language: English - Date: 2012-01-07 00:54:20 Medicine Biology Niemann–Pick disease Newborn screening Sphingomyelin Screening Sphingomyelin phosphodiesterase 1 Niemann-Pick disease SMPD1-associated Health Rare diseases Lipid storage disorders
129	November 22, 2013 The Honorable Patty Murray, Co-Chair The Budget Conference Committee 154 Russell Senate Office Building Washington, DC 20510 Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2013-12-06 10:56:30 Pharmacology Drug discovery Rare diseases Epidemiology Orphan drug Orphan Drug Act Niemann–Pick disease National Organization for Rare Disorders Foundation Fighting Blindness Health Pharmaceutical sciences Medicine
130	Consumer Health Information www.fda.gov/consumer Rare Diseases Take Spotlight in Annual Event Add to Reading List Source URL: www.fda.gov Language: English Epidemiology Epidermolysis bullosa Rare Disease Day Food and Drug Administration Global Genes Project National Institutes of Health Orphan drug Niemann–Pick disease Health Medicine Rare diseases